Last week was appointment overload. Tuesday; cat scan and MRI of the brain. Wed: Xgeva.
Thursday; Radiologist.
Things I learned; my ribs still hurt because it still shows a fracture. There's nothing in my head - literally what the Dr. said to which I replied, "Well I hope there's something there but that would explain a lot."
I found out that I can not miss taking medication or walking is extremely difficult and painful. The reason being a spot that may have to get more radiation but not yet. My spine can't be radiated any more but the ribs and the other spot possibly. Thankfully, not now. I go back in another 4 months and then we'll see.
This week I have one appointment and then none until after Albuquerque. Yay..yay ...yay!
Monday, November 19, 2012
Friday, November 9, 2012
Interesting appointment today.
"I remember you." Tech says.
"I remember you too." me
"I can't believe you're still here. (Can't believe your still here - what does that mean I'm thinking) Tell me everything that's happened." - Tech
I told her about the lumpectomy, the port, 7 weeks of radiation, Zometa (1st bone strengthener they tried), the surgery on my leg, 3 more weeks of radiation, the port removal, and Xgeva (bone strengthener I get once a month) and about appointments next week for a brain MRI, a cat scan of my organs, and an appointment with the radiologist to discuss possible radiation treatments again.
"That's amazing. You look great. I really thought when I first saw you (one and a half years ago)
that it was a death sentence. It looked that bad."
Now I know what she meant, 'can't believe you're still here.'
"But here you are." Tech says.
"Yes, God has really taken care of me."
"Well, it's amazing and I'm so proud of you." says Tech.
I have to say it kind of surprised me. I mean I've known it's a miracle I'm still here. It just hasn't been
verbalized by any of the Dr.'s I've seen.
Praise God from Whom all Blessings flow!
"I remember you." Tech says.
"I remember you too." me
"I can't believe you're still here. (Can't believe your still here - what does that mean I'm thinking) Tell me everything that's happened." - Tech
I told her about the lumpectomy, the port, 7 weeks of radiation, Zometa (1st bone strengthener they tried), the surgery on my leg, 3 more weeks of radiation, the port removal, and Xgeva (bone strengthener I get once a month) and about appointments next week for a brain MRI, a cat scan of my organs, and an appointment with the radiologist to discuss possible radiation treatments again.
"That's amazing. You look great. I really thought when I first saw you (one and a half years ago)
that it was a death sentence. It looked that bad."
Now I know what she meant, 'can't believe you're still here.'
"But here you are." Tech says.
"Yes, God has really taken care of me."
"Well, it's amazing and I'm so proud of you." says Tech.
I have to say it kind of surprised me. I mean I've known it's a miracle I'm still here. It just hasn't been
verbalized by any of the Dr.'s I've seen.
Praise God from Whom all Blessings flow!
Thursday, September 27, 2012
MRI update.
The Dr. was happy with the results. She said it looked pretty good. There are a couple of really small
tumors but nothing to worry about. The one thing I was confused about is the report says a compression fracture at T1 likely pathologic. She said it was healing and that it wasn't new but it
was the first time its been in any of the test results. So how old is it? It is right where I get sharp pains every once in a while. She seemed very happy with the results so I choose to be too.
They did increase pain medications the visit last week which seems to be helping. There are always issues with that too - sleepy, intestinal problems, not thinking clearly - but that's ok. I can deal with these.
Something I'm reading - from In a Pit With a Lion on a Snowy Day:
Maybe that is why God sometimes invites us to defy impossible odds. Maybe it is one way He can show us His omnipotence. Maybe God allows the odds to be stacked against us so He can reveal more of His glory.
I can always hope this is the case. Even if it isn't I trust Him in this circumstance and see ways that He has worked.
The Dr. was happy with the results. She said it looked pretty good. There are a couple of really small
tumors but nothing to worry about. The one thing I was confused about is the report says a compression fracture at T1 likely pathologic. She said it was healing and that it wasn't new but it
was the first time its been in any of the test results. So how old is it? It is right where I get sharp pains every once in a while. She seemed very happy with the results so I choose to be too.
They did increase pain medications the visit last week which seems to be helping. There are always issues with that too - sleepy, intestinal problems, not thinking clearly - but that's ok. I can deal with these.
Something I'm reading - from In a Pit With a Lion on a Snowy Day:
Maybe that is why God sometimes invites us to defy impossible odds. Maybe it is one way He can show us His omnipotence. Maybe God allows the odds to be stacked against us so He can reveal more of His glory.
I can always hope this is the case. Even if it isn't I trust Him in this circumstance and see ways that He has worked.
Monday, September 24, 2012
In my reading today I realized this very much fits my
present circumstances. I have been
feeling unaccomplished in anything.
Reading this made me realize my feelings are not the
truth.
September 24, 2012
from: Streams
in the Desert
When they came to the
border of Mysia, they tried to enter Bithynia, bu the Spirit of Jesus would not
allow them to. Acts 16:7
What a strange thing for the Lord to prohibit, for they were
going into Bithynia to do Christ’s work!
And the door was shut before them by Christ’s own Spirit.
There have been times when I have experienced the same
thing. Sometimes I have been
interrupted in what seemed to be quite productive work. And at times, opposition came and
forced me to go back, or sickness came and forced me to rest in some isolated
place.
During such times, it was difficult for me to leave my work
unfinished when I believed it was service done in the power of His Spirit. But I finally remembered that the
Spirit requires not only a service of
work but also a service of waiting. I came to see that in the kingdom of Christ, there are not
only times for action but times to refrain from action. And I also came to learn that a place
of isolation is often the most useful place of all in this diverse world. Its harvest is more rich than the seasons
when the corn and wine were the most abundant. So I have learned to thank the blessed Holy Spirit that many
a beautiful Bithynia had to be left without a visit from me.
Dear Holy Spirit, my desire is still to be led by You. Nevertheless, my opportunities for
usefulness seem to be disappointed, for today the door appears open into a life
of service for You but tomorrow it closes before me just as I am about to
enter. Teach me to see another
door even in the midst of the inaction of this time. Help me to find, even in the area of service where You have
closed a door, a new entrance into Your service. Inspire me with the knowledge that a person may sometimes be
called to serve by doing nothing, by staying still, or by waiting. And when I remember the power of Your
“gentle whisper” (I Kings 19:12), I will not complain that sometimes the Spirit
allows me not to go. George Matheson
When I cannot
understand my Father’s leading,
and it seems to be but
hard and cruel fate,
Still I hear that
gentle whisper ever pleading,
God is working, God is
faithful, ONLY WAIT.
Then to make sure I got the point, I read the following from
“Jesus Calling”.
LIVE FIRST AND FOREMOST IN MY
PRESENCE.
This is the path I have set before
you. As you follow it
wholeheartedly, you experience abundant Life and Peace.
Sometimes this is a very difficult place to be. And to
understand what is going on - why the silence and inactivity. Then I remember the things
I’ve been learning from this experience and also the
messages I’ve gotten out for people to hear:
o Trust
God above all else and work on your relationship with Him.
o Love
your family and friends and let them know how special they are.
o Take
care of yourself, physically, mentally, emotionally and spiritually.
o Get
your mammograms on time. Don’t
wait for the possibility of it spreading and becoming something more difficult
to fight – or that you will have to live with the rest of your life. Notice I did not say
“ladies” because MEN can get it too.
These are the most important to me
right now.
Certainly, writing and sharing are
not inactive.
Saturday, September 15, 2012
Monday - Xgeva shot and blood work, slept almost all day because of shot
Tuesday - Had to go to the Dr. because of problems I've been having. They are changing
my pain meds to see if that works and doing an MRI next week to see if anything
new could be the culprit. Tired does not begin to describe how I was feeling.
Wednesday - I guess the shot was making me feel bad. Had a migraine? Neck, back head felt like
they were going to explode. Slept a lot again.
Thursday - Felt better during the day and I got my new medications -tried them at night.
Don't know if they're going to work, couldn't tell any difference. Maybe it takes time.
Friday - felt better in the a.m. but around 3 started feeling like I'd been run over by a truck. That
is how the Dr. said the shot would make me feel for 2 weeks.
Saturday - Chuck decided he wanted to rearrange the family room. For me that means dusting and
helping when possible. It's not finished and more stuff got moved into my art room which
means more rearranging in there. Last weekend he painted my art room or "studio" and
Jesse, Jason, and Chuck moved my stuff into my new space.
Looking forward to everything being back to normal.
I will take pictures when everything is done.
Feeling better today, yay.
Wednesday, August 29, 2012
I called one of my Dr.'s today because
I needed to make an appointment.
The person I spoke to put me on hold
then the phone rang..and rang and continued
to ring until I hung up and called back.
When she answered the phone I told her
what happened and she very rudely told
me that she'd redirected my call to the nurse
and the nurse didn't answer because she
was trying to look up my information. She said she was
walking back to the nurse to see when I needed
to make another appointment. I know what I'm
saying doesn't sound rude but she really was and
I don't know why it really upset me.
I have noticed that I get upset more easily than
I used to - don't know if it's cancer, drugs,
whatever. I hung up and decided to stop feeling
angry and look at things I'm thankful for:
I only have to get bloodwork and an Xgeva shot
this next month. I don't have any real Dr. appointments
till the end of October. That's quite a break for me.
I usually have an appointment at least every other week.
So instead of getting upset with someone who was
probably PMS-ing.. I choose to be thankful I don't have
to see her till December and by that time I will have
forgotten the whole thing.
I have also decided to start working on my art daily.
At least an hour. Today I worked on a t shirt that
I painted and needed some fixing. I was thinking I was
going to quit painting t shirts but I decided if I paint them
they will be light in color. Trying to paint on dark colored
shirts is extremely time consuming and doesn't work well.
I also want to put together some drawing and painting lessons
on my other blog, probably around the middle of September.
And I need to open an Etsy shop. I've been saying that
forever so my goal is open a shop by September 7th.
We'll see how it goes because it does depend on
how I'm feeling.
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